COVID-19: Understanding the Impact

The COVID-19 pandemic has had huge impacts on everyone in society. We need to make sure that we are working to mitigate its effects on those affected by prostate cancer as best we can.

We know that the pandemic has led to delays and changes to how cancer is diagnosed and treated, and that changes to routines through shielding and lockdowns have affected our lifestyles and how easy or difficult it is to live with prostate cancer.

The more information we have on how prostate cancer patients are specifically affected, the better able we will be to work to provide the right kind of information, make the best decisions about our work in the future, and work in partnership with others to try and lessen the impact of the pandemic for people with prostate cancer.

About the survey

This survey will be open until Friday 16 April 2021 and should take approximately 20 minutes to complete and all answers are anonymous. You may answer it on behalf of a loved one who has been diagnosed with prostate cancer.

The survey is divided into sections, some of which are quite short and some of which are a little longer, on diagnosis, treatment, everyday life, and vaccines. In some places you will be given the option to provide us with more information if you so wish. Depending on the internet browser you use, you may have to hold down the Ctrl key on your keyboard to select multiple options in response to some of the questions.

We also ask some questions about you. This helps us to understand if we are hearing from everybody, and if some communities have different pandemic experiences to others. You may choose not to share some of this information by selecting the ‘Prefer not to say’ option.

Your personal data will only be used to facilitate your participation in this project. If you would like us to change the way we contact you at a later date visit our Update Your Contact Preferences page, call 020 3735 5444 or email [email protected]. For full details on how we use and look after the information you provide, as well as your rights in relation to your personal data, please see our Privacy Policy.

Information and support

If you believe you may have contracted coronavirus, call the NHS on 111. Ensure that you tell them about your prostate cancer diagnosis and any treatment that you are having/have had.

You can find information on COVID-19 on the NHS website, and our information page. You can also read Cliff Harris’ account of his prostate check-up during COVID here, in case you have an appointment and aren’t sure what to expect.

Information on the COVID-19 vaccination programme can be found here.

For general information about prostate cancer and how it is treated, we provide a free information booklet which you can order or download here. You can also find a number of organisations which offer support and advice listed here.

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