Prostate Progress

Why Prostate Progress matters

Contribute to a world free of prostate cancer

Thanks to research, more men now survive prostate cancer. But many still face delays, uncertainty, or treatments that don’t work well for them. Your experience can help change that. You’ll help us understand what’s working, what isn’t, and where care can be improved. Data is vital for your individual care but also to improve healthcare services across the UK. By bringing together patient experience and healthcare data, Prostate Progress is helping researchers and clinicians better understand prostate cancer; from earlier diagnosis to more effective treatments and improved management of side effects. The data you provide, will help researchers accelerate discovery, help personalise care, reduce inequalities and deliver better outcomes for men affected by prostate cancer.

1 in 4

Black men affected in the UK

1 in 8

White men affected in the UK

Understanding disease

Exploring why prostate cancer rates vary between ethnic groups

Individual care

Making sure your whole care team, from GP to hospital, has up-to-date information to help provide the best and safest care. Helping people to manage their prostate cancer better

Improving diagnosis

Gathering evidence to demonstrate that prostate cancer screening is effective and finding new ways to identify early signs of prostate cancer

Treatment and prevention

Testing a treatment for prostate cancer in the real world and investigating the benefits of specific treatment options for men with prostate cancer

Patient safety

Monitoring the safety of treatments for prostate cancer and studying the impact of side effects

What you get

What could joining mean for you?

Data is vital for your individual care, but also to improve services across the UK. The information we learn from Prostate Progress can be used to understand more about prostate cancer, develop new treatments and tests to better diagnose it, monitor safety, plan new NHS services, and evaluate policies.

Improved efficacy

Helping researchers understand which treatments work best

Faster Diagnosis

Supporting earlier detection and better decisions for future patients

Helping others

Improving care for men like you across the UK

Novel Treatments

Being matched to new trials and treatments

Every experience counts. Men from all backgrounds are taking part so that every man is represented.

Join Prostate Progress now

How it works

What does the study involve?

Taking part involves completing an online survey every few months. With your permission, we will also link to your NHS records to improve the accuracy of the research.

How it works

1

Sign Up

Joining takes just a few minutes and can be done anytime, anywhere, on your phone, tablet, or computer.

2

Share your data

We will ask you to complete questionnaires about yourself and your prostate cancer treatment to date.

3

Data is de-identified

All your data and information is stored on secure data servers based in the UK that use industry-standard encryption and controls in line with the UK laws and best practices.

4

Used in research

Only registered researchers at registered organisations can access data for health research that benefits the public.

Your Data

Keeping your data safe

We follow the ‘Five Safes’ framework of data handling. The ‘Five Safes’ framework is a set of principles which enable data services, like Prostate Progress, to provide safe research access to data. The framework has become best practice in data protection whilst fulfilling the demands of open science and transparency.

Safe Data

Researchers only use data that has been de-personalised to protect privacy.

Safe Settings

Access to data is only possible using secure technology systems – the data never leaves the secure database.

Safe Projects

Data is only used for ethical, approved research with the potential for clear public benefit.

Safe People

Only trained and specifically accredited researchers can access the data.

Safe Outputs

All research outputs are checked to ensure they cannot be used to identify subjects.

Real stories

Hear from those already involved

The sharing of information and data is absolutely essential. There are so many people working behind the scenes that are trying to find better treatments, cures, and to do something that’s going to make life better for all of us. It’s a small step for us, once diagnosed, to help by agreeing to join Prostate Progress and sharing our experiences, our information, and our data.

Neil

The more information and support that PCR receives, then the quicker they can find a solution to this life-changing cancer.

Paul

Alphonso

Join Prostate Progress now and help shape prostate cancer research

Join Prostate Progress now