We have prostate cancer, both of us. One has it in his body and his life; the other has it in her life. Together, we have prostate cancer. It has been a feature since first diagnosis in 2012; it receded somewhat after the first treatment; it re-emerged fully when it came back having spread away from the primary tumour site and it has been with us ever since. We have found a new normal and had to reassess and recalibrate this new normal with each turn of our prostate cancer story. This has also meant that we have had to reassess and recalibrate what it is for us as persons affected by prostate cancer to be well and fundamentally what wellbeing means to us in this context.
Having tried various ways to enhance being well and wellbeing from diet and exercise to leisure and travel activities, we found that tiredness, fatigue and sleeping problems could often be overwhelming. Having reflected on what it meant to be well and what wellbeing was, at times we are still not completely sure. However, working with PCR has been key in enhancing being well and wellbeing as it has made our lives more purposeful.